Today we saw a different Developmental Pediatrician for a 2nd
opinion. I’m glad we have. Our first
experience brought nothing but frustration and was not helpful at all but this
one was quite different. The first place
we could not see the Dr (even after a 5 month wait); here we saw the Dr and his
assistant. The first place said mind and
body are separate so we will not talk about or concern ourselves with things
physically wrong (go to a diff Dr for that); here he was fully examined and the
Dr wants to dig farther to see if we can find a root cause for his hypotonia
and delay. The first place slapped a
label on him, practically as soon as we got our foot in the door and then based
everything else on that and mostly talked at us. This Dr is trying to collect
as much info as possible, from us and Robbie’s other Drs, before making any
sort of diagnosis. Which is very appreciated. He did say he could see why someone may say
that Robbie is autistic but doesn't see it enough to base it on his first
meeting and no further info.
So where we stand now is:
- We will still go to the follow-up of the evaluation done at the other place to see their findings.
- He will be having another ekg (the Dr said things can change since the last one)
- Possible further genetic testing depending on what was done at the other place.
- Follow-up with this Dr after we fill out questionnaires and he collects the medical histories from other Drs.
- Need to look into schools because he needs more socialization.
All in all we liked this Dr better, certainly not due to
facilities but due to his thoroughness and desire to get a comprehensive look. Lots more questions and appointments to go
through. We are still hopeful that if we continue our course of working hard on
therapy that he will one day lead a typical life.
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