Endoscopy Follow Up

Today we went in for the follow up to last weeks endoscopy. Everything is normal and in great shape.  This means his eating problem is not caused by any sort of allergy or other physical problem in the upper GI.  So it is probably due to the hypotonia, global delay, and sensory integration problems.  They got us on the wait list for the evaluation at Arnold Palmer’s feeding intensive program. We are blessed by having a top notch Dr who helped in the founding of the program so we got on the list a bit faster.  What happens now is that we wait for a phone call to schedule the evaluation. There are 5 people ahead of us on that list.  The evaluation is extensive and if they decide he is eligible we will then be put on a wait list for the program (even longer).  The program is 3 – 4 weeks of intensive therapy at Arnold Palmer. We would be expected to have Robbie and one of us there Monday – Friday 3 meals a day, some snacks, and some training.  The Dr warned us it is very intense and expensive (pray about insurance covering part, at least).  They only want people who will be serious about it and kids who are good candidates. So please be praying that we will be able to get in.  His lack of eating real foods is the hardest thing we deal with with him and it’s the main thing that keeps us from being able to really interact and live as a normal family together.  All the other problems are easy in comparison.  We will keep you updated!