Wednesday, May 16, 2012

Long Robbie Post


WoW!  We went to therapy today thinking it was a normal visit and were thrown for a loop.  First off the person who oversees his therapy funding was there to reevaluate, secondly he ended up having physical therapy as well and last of all we left and will not be back for an undetermined amount of time. 

            The PT reevaluated him and then discharged him! No more PT!!!  This does not mean he is caught up to his peers. It does mean he can safely navigate his environment and he is now initiating improvement on his own time table.  We are beyond grateful for all his PT has done and how she has often gone out of her way to find ways to help him improve.  We will see her occasionally when there for FT but will definitely miss “play” time with Ms Kris.

            Feeding/Speech Therapy also went quite unexpectedly today. Over the last several weeks Robbie has become increasingly defensive when it comes to eating. His therapist voiced concern that if we continue pushing him he will begin to go backwards instead of progressing. She has seen this happen in other patients. So the plan is that he will continue eating what he currently does but we will put on hold trying to get him to chew for a few months. We will offer him chewable foods at his meals but if he rejects then that is fine and we don’t push it at all.  Hopefully within a few months he will be more receptive to trying again and then we will resume feeding therapy.

            This leaves Speech Therapy. Everyone agreed he needs to continue with speech since he is growing increasingly frustrated with his inability to communicate. Since it takes and hour to get to therapy and an hour back and ST is only ½ an hour we decided it would be prudent to change therapists until we start back with FT (there are no feeding specialists closer). So for the time being Robbie will receive in-home speech therapy. This will be so much easier!
            So to sum up….YAY for Robbie!  Pray for continued improvement.

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