Summer :
- Lots of sick, swimming lessons, school break, therapies as usual.
- Eye Dr appointment since we were seeing his eye wander up when tired. Wait 6 months and see.
- Sick = stale mate in feeding progress.
- Evaluation with AP Feeding center outpatient therapy. Accepted.
- Still waiting for a slot to open to continue eating progress.
Fall:
- GI #2 changed one reflux med to a stronger one to see if that would help him eat better (End of August)
- Started 1st grade!
- Started with our co-op! The boys LOVE it!
- Therapies continuing per the norm.
- Wonderful family mini get-away to the beach.
- Robbie’s behavior and overall self trending downward.
- GI #1 appointment, I was concerned about the med he had been put on by GI #2, reduced reflux med but stayed on it. Added an appetite stimulant.
- By mid-October it’s obvious change is needed. Hard decision to drop OT/ST for now in order to have more time to focus on getting school done and hopeful for better behaviors.
- After long discussion with the magical OT Miss Tiffany we decided the medicine is probably to blame for his awful behavior. Quick call to Pharmacist confirms it could have him in pain and generally screwed up.
- Stop that med and go back to old one.
- Three days later and already seeing improvement. Poor baby!
- Eye dr appointment this morning. Diagnosed with Hypertropia. Of course his is a “unique” case because both eyes fixate well individually but the right will randomly go up. Typically it would not fixate well either. When his right eye wanders up the brain shuts it off and just ignores it, he does not see double just doesn’t have depth perception or peripheral vision at those times. Patching won’t fix it. Giving it another 6 months to see if it gets worse. Have to track it. She said he will probably need surgery on both eyes to correct it.
Other:
- While much of this sounds like a bummer a lot of fun happened in between sickness and such. The pictures are a bit of proof ;)
- In the midst of this we paid off the student loans! House is all we owe on now! Freedom feels good.
- Looking forward to the holidays :D
Prayers:
1.
Meds work out.
2.
Get into feeding therapy.
3.
Eye improves.
