Many Happenings

Hmm where to start? I think I will go back to where the ENT wanted a sleep study done. 

We had the sleep study done and they found Robbie has moderate obstructive sleep apnea. That combined with his consistent tonsil problems was reason enough to get the tonsils and adenoids removed. They said it would improve the sleep apnea by 80 - 90% and that since he will be getting better sleep we should see an increase in focus and decrease in hyper activity. We will see...

We got that info a few days before Robbie's 2 GI procedures and blood work, all for allergies for the feeding center, were scheduled to be done. We let them know and they decided to postpone it and have it all done at the same time. So on Thursday, Feb 26th he had the T&A, Upper GI with Pancreatic something, lower something sweep, and blood work. This hospitalization was the hardest he's had. In the past Robbie hasn't blinked an eye through it all. Never got nervous or upset, just stayed his happy-go-lucky self.  Apparently the sleep study has changed that for him :(  Robbie is allergic to adhesives and hates all things that stick to him. Well for the sleep study he had patches stuck all over his head, face, neck, chest, legs, etc for 8 hours. It's kinda traumatized him I guess. He did fine at the hospital until the nurse put a patch on his chest to get his vitals. At that point he broke down and just wanted to leave. From then on he went from smiling to crying to smiling again. Anytime they had to attach something to him he would break down. They gave him premed to calm him down before putting him in the gown and taking him back. I'm glad. 

Pre-med Drowse

The surgery and procedures went very well. He came out of anesthesia better than he ever has before. He was upset when he woke and kept asking to leave. Seeing it wasn't working he asked for the patch off his chest, so we did, then the iv and wrap off his hand, then his gown off, then shirt on, followed by pants, socks, shoes, Daddy, door and car. With each step calming down a bit then asking for the next. This kid is using ABA against us! 

Monkey got bands too :)

Recovery was rough. He ended up in the ER Sunday night with dehydration from non stop vomiting. They did some xrays, gave him a steroid shot to decrease swelling, an Rx for an anti nausea med, and pumped him full of liquid. They said he seemed to have caught a virus and we think they were right. Henry had a head cold and then Robbie and I seemed to get it. So Robbie has been coughing like crazy most of his recovery. He was able to keep nothing down but water from Saturday after surgery until Wednesday. Since then he has been slowly getting back to normal eating. We aren't quite there yet but hopefully soon. 

ER Visit

Today we went to the GI for the results of the allergy tests. Fortunately he has no serious allergy issues. They have totally ruled out dairy, gluten and all the biggies that stay in your system longer and cause more serious malabsorption type problems. They did find a few of the other kind of allergies where it affects you within an hour or so and then is out of your system quickly. It could be enough to make him feel bad and not want to eat. Peanut, apple, peach, and pear. Apple being the highest. Odd huh? So they referred us to an allergist in order to have it verified with a skin test because it is more reliable. Poor kid has apple at least twice a day! They also found reflux and want him on two medicines to treat it. 

The dr was very concerned about his weight loss over the past few weeks and that combined with getting the reflux under control and the allergies verified, has moved the feeding center off another 3 to 6 months. Super frustrating!!! He said this is why they thoroughly check though because if Robbie had gone through the center with these issues it would have failed and he still wouldn't be eating right. 

So we keep working on what we can and wait. Keep up the prayers for this as well as ABA. We have a few leads for it and are just waiting to see how it plays out. Also pray for his upset over Drs now. Ever since he has been almost hysterical when we had to go to the ER, then the Dr, and again to the Dr today. We have a minimum of 4 others this month, and the allergy tests (whenever that happens) is going to be unpleasant as well. He has many Drs to face and I hope and pray he can go back to being happy and at ease to see them.