We have prayed and prayed and prayed. Some of you have too.
We have planned and fought for it but once again the Feeding Intensive is not
going to happen this year. We are two
weeks from our start date. I am bewildered, irritated, dejected and crushed.
Yet I have peace.
Here’s what happened. The billing for the center is mostly
done as 20 Occupational Therapy visits. In spite of what Chet was told when we
bought the plan, the insurance is now saying we only have 35 covered visits. We
have 4 left this year and then we have to pay out of pocket. Well the feeding
center’s price per visit is extraordinarily higher than a normal one. We could
go through with the four week intensive and then fight the insurance to get the
money back but that leaves us with the risk of paying it all ourselves. Today
we were told the total would be $60,000. Not a typo. Sixty thousand dollars.
Yeah. That is too big a risk. Not prudent.
What do we do now? We will wait until the new year starts
and we have 35 visits covered again. Hopefully the insurance will not give us a
problem about it and simply cover the majority of it. In the mean time we will
start working with his Speech Therapist on getting more comfortable with foods
and continue his oral motor exercises, etc.
All my dreams for a more normal 5th birthday and
the holidays are flushed down the toilet. As I’ve said before his inability to
eat a normal meal is the biggest hindrance to leading a typical family life,
the hardest thing to deal with. So this is really tough to hear. Especially
with us having been so close to finally getting in.
Like I said at the beginning, though I feel crushed I have
peace. I know this is the right choice. It would be pure foolishness to put
ourselves that far into debt when a four month wait could leave us with no debt
at all. I think God has been preparing me for the news. All week I have been
thinking on Philippians 4:6-7. I’ve been reading and reflecting on
like passages and just praying about it a lot. Well here we are denied our
desires for the moment but I have peace. After all, we have been doing this for
four years what’s another four months?!
Please continue to pray that he has victory in these things
as we continue to work with him on it while we wait.
